Tomorrow I will begin my journey down an unknown path. I have yearned to go down this path for many years. Now that the moment is here to take my first step, I am apprehensive about going further than I have. It will be beneficial to me to go, but it will put me face to face with the stark reality of the situation. My body is not perfect and there isn't much that can be done to "cure" or "fix" me. (well not until the next live anyway) As I come closer to getting on this path, the doubts are starting to fly. Can they really help me? Will things become better? What if they can really help me? What if they can't? It is a scary proposition either way.
Oh, I guess I better say what I am doing. I am going to Sacramento tomorrow and Thursday to meet with renown experts on Fragile X Syndrome, which I have and which my son has. I am really hoping they can help me in some way. I am really getting exhausted trying to act like a normal person. I just don't want to feel funny or weird any more.
8 comments:
Answers are good. Knowledge is power. Keep us posted.
"normal" is a setting on the dryer. We are all special in our own ways. I hope you find good answers for yourself and your son, answers that will make life easier. Good for you taking this big step.
Rosemry
I hope your journey gives you answers and most of all some peace and comfort for you and your son.
I like the first two comments you have received.
Masquerading as anything is exhausting. Knowledge and truth are liberating. I'm very interested in what you learn about your condition and in following along whatever part of your path you will share.
God bless you on this journey.
I will be thinking about you Karen, and praying. May you find answers and comfort. Please keep us posted on what you learn.
You are in my prayers, Karen. This can only be a good thing, knowing more about what makes you, you.
And since I think you are all kinds of great, whatever is part of you should be okay, too...even if it is causing you some problems. Maybe you can make a truce with that fragile x and feel better. I surely hope so.
Please keep us posted on what the doctors say, okay?
Hugs.
=)
You are in my thoughts and prayers.
Karen, my heartfelt prayers will be with you and the specialists. Please keep me informed on the results! Much love and an extra big hug for your courage dear friend!
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